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Jordan Paganelli Sarcoma Foundation, Inc.

Welcome to JRock-n-Run

This website is about Jordan and raising funds for Sarcoma Cancer Research .
Help battle Sarcoma in Jordan's memory by donating today
Jordan Paganelli
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Jordan Paganelli Sarcoma Foundation, Inc.
Aloha Peeps,

Laurie and I just registered for the Make-A-Wish "Jingle Rock" 5K Fun Run on 21 Dec in Honolulu. We did it last year and it was awesome!!

All proceeds benefit the MAW foundation which is near & dear to our hearts.  In honor of Jordan (who received a wish), we created "Team JP".  If you'd like to register and join Team JP (or, simply donate to MAW), just click
on the image below.

Make a Wish 5K

TEAM JP,
Due to a variety of scheduling conflicts, Laurie and I have decided NOT to host the JRock-n-Run this year (2014).
Additionally, we have decided to discontinue the event for the foreseeable future.  
All of you have done a tremendous job over the past few years ... and, Laurie and I could not be more proud of the success that the event has enjoyed.  However, we feel that the "momentum" of the event has declined to the point where it is difficult to justify the level of effort required to continue.  
Laurie and I fully understand that "life goes on" for the many kids and families that comprised the initial surge of spirit and energy around the event.  We are extremely proud of the awareness and funding that we were able to generate for Childhood Cancer Research ... and, we are especially proud of the way the community honored Jordan and the memory of his life.   Each and every one of you played a key role to our success.  Laurie and I will be forever grateful for your time, patience, and overwhelming support.
Despite our decision regarding the JRock-n-Run, Laurie and I will continue to visit Southern Maryland each and every November.  And, instead of running around doing "last minute" taskers for the event, we’ll be spending our time visiting with all of you…and visiting his marker at Arlington Cemetery.  This is the way Jordan would have wanted it: enjoying time with friends.
One final note:  We WILL keep the JRocknRun.org web site active to serve as a way to share/promote other fundraising/remembrance events throughout the year (ie: the Valentine Dance, the Halloween Party, etc).  So, please feel free to utilize the site.   Dawn and I (along with Joe Riley our web manager) will be happy to help you promote your venue using the existing site. 
Fly Safe — Live Life — Make a Difference
ONE DAY AT A TIME !!

Cheers,
Jordan's Dad

Jordan Scott Paganelli was just a few days from turning 18 years of age when he died on November 9, 2009 after courageously battling a rare form of cancer for some 23 months.


Meet Jordan Scott Paganelli

This website is dedicated to Jordan with special gratitude for his courageous life and the many memories that he has left for his family and friends. We have chosen to keep his memory alive through this website.

Over the past few years, with the dedication of many financial sponsors and incredibly devoted family and friends, we conducted the JRock-N-Run (a 5K Trail Run and 1.5 K Fun Walk) event to honor Jordan's memory while raising awareness for Sarcoma/Cancer and to provide an opportunity for people of ALL ages to challenge themselves morally, mentally, and physically.

The Background

Jordan's fight began on January 11, 2008 when he was diagnosed with Alveolar Rhabdomyosarcoma (ARMS) (pronounced: Rab-doe-my-o-sar-co-ma) stage IV.
What's Rhabdomyosarcoma (i.e.: Rhabdo and/or ARMS)?
Rhabdomyosarcoma (Alveolar subtype) is:
  • A very aggressive, highly malignant soft-tissue Sarcoma which arises in undifferentiated muscle cells anywhere in the body.
  • The most aggressive childhood cancer; however, it strikes adults and teens as well.
  • Strikes at least 350 kids in the US each year.
  • Unlike more common cancers, ARMS is considered rare and thus receives minimal outside funding for research (causing the 5 year survival rate to be low).
  • Often has spread to other areas of the body by the time a diagnosis is determined. When a disease spreads, it is labeled a “meta-static” disease.
  • The 5 year survival rate for ARMS patients whose disease has become meta-static is approximately 20%.
Did you know?
  • Each school day, 46 children are diagnosed with cancer.
  • One in 330 children will develop cancer by age 20.
  • Cancer remains the number one disease killer of America’s children- more than Cystic Fibrosis, Muscular Dystrophy, Asthma, and AIDS combined.
  • Rhabdomyosarcoma accounts for approximately 3.5% of the cases of cancer among children aged 0-14 years and 2% of the cases among adolescents and young adults aged 15-19 years.

In November 2009, Jordan was fondly remembered by family and friends following his death as seen in this video tribute to Jordan.

Thank you for visiting. Please take time to learn more about Jordan and the efforts of so many to honor his memory.
 
 

Content copyright. Jordan Paganelli Sarcoma Foundation, Inc. All rights reserved.

 
     
         
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