On July 29, 2012, I (Jordan's mama) will be SHAVING MY HEAD in support of Childhood Cancer! Please read below for more information and visit my web page to help me raise funds.
Please consider passing this along to friends, family and employers... these kids deserve all that we can do!
Mahalo for your support!
Laurie Paganelli
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This is the third year that our team 46 Mommas Shave For The Brave has joined forces with The St. Baldricks's Foundation to raise money, awareness and be advocates for our children who have all battled cancer. We are a unique team in that we are comprised entirely of Mommas who have all heard the devastating words, "your child has cancer."
The 46 Mommas represent all mothers who make the cancer journey with their child. Our annual teams are comprised of women from across the U.S., with different backgrounds, beliefs and lifestyles; there is one thing that they have in common --- childhood cancer.
In 2010, our inaugural team took the name 46 Mommas Shave for the Brave and established a fundraising goal of $1 million for The St. Baldrick's Foundation. Each year, a new class of 46 Mommas is inducted into the cause to empower and engage mothers of children with cancer.
Through increasing awareness of childhood cancer and raising funds for childhood cancer research by shaving our heads, we hope to one day be a group that no longer needs to exist.
Our goals:
Raise $1 million for St. Baldrick's Foundation's childhood cancer research programs.
Hold an annual head shaving event, uniting cancer mommas and their families, to help raise these research funds.
Increase awareness of key childhood cancer issues in our local communities.
Advocate to increase funding, both nationally and locally, for childhood cancer specific issues.
Collaborate with other childhood cancer organizations to help produce a stronger, united childhood cancer community.
Awareness=>Funding=>Research=>CURES
Please consider donating today. Help us reach our goal of $1 million in 2012 to fund research that will bring an end once and for all to pediatric cancer!
Jordan Scott Paganelli died on Monday, November 9, 2009 after a 23-month battle with a rare, aggressive form of cancer called Alveolar Rhabdomyosarcoma. He died peacefully at home - 5 days prior to his 18th birthday.
One of ways we have chosen to keep his memory alive is by hosting an annual event within the community that captures the essence of Jordan's 3 passions: Running, Music, and Friendship. Jordan's friends nicknamed him "JRock" because of his incomprehensible courage, strength, and grace under pressure. As a result, we have proudly named our event the "JRock-n-Run."
The 1st Annual JRock-n-Run in 2010 was a tremendous success and was attended by over 1500 people. In 2011, the event was held for the second year at the same location - the Historic Sotterley Plantation in Hollywood, Maryland - on Saturday, November 5th. Our next scheduled event will be in June 2013, so watch this site for more details.
Our vision was to create a festive annual event that serves to honor Jordan and his memory while raising awareness for Sarcoma/Cancer and providing an opportunity for people of ALL ages to challenge themselves morally, mentally, and physically. Our event features a 5k Trail Run and a 1.5k Fun Walk that are designed to encourage everyone to participate in a spirited physical activity while attempting to achieve PERSONAL goals that they have set for themselves. Following the races, we will continue to enjoy the evening with what we are calling "Jordan Palooza" - a festive LIFE CELEBRATION featuring live music, good food, and fun activities for the entire family. Our idea is simple: to remember Jordan's passion for running while bringing the community together in a way that is fun and uplifting.
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Thank you to all who participated in our November 5th event this year.
Following "lessons learned" from our November 2011 event, we have determined that the best time of year to hold our annual JRock-n-Run is during the month of June. The kids are out of school and the weather is still relatively mild and predictable. However, in 2012, there are no available dates at Sotterley Plantation to hold our event. So, we are "skipping" 2012 and will resume our annual event in June of 2013. We have already reserved Sotterley for Saturday, June 29, 2013 to hold our "3rd Annual JRock-n-Run & Life Celebration Event". We will start putting out details in late fall of this year. Laurie and I would like to thank you again for your continued support. Have a wonderful Day!!
This event is about Jordan and raising funds for Sarcoma Cancer Research
Jordan Scott Paganelli was just a few days from turning 18 years of age when he died
on November 9, 2009 after courageously battling a rare form of cancer for some 23 months.
Meet Jordan Scott Paganelli
This website is dedicated to Jordan with special gratitude for his courageous life and the many memories that he has left for his family and friends.
We have chosen to keep his memory alive through this website and
by conducting a festive annual 5K Trail Run and 1.5K Fun Walk.
This event is also an opportunity to honor Jordan's memory while raising awareness for Sarcoma/Cancer
and to provide an opportunity for people of ALL ages to challenge themselves morally, mentally, and physically.
Background
Jordan's fight began on January 11, 2008 when he was diagnosed with Alveolar Rhabdomyosarcoma (ARMS) (pronounced: Rab-doe-my-o-sar-co-ma) stage IV.
A very aggressive, highly malignant soft-tissue Sarcoma which arises in undifferentiated muscle cells anywhere in the body.
The most aggressive childhood cancer; however, it strikes adults and teens as well.
Strikes at least 350 kids in the US each year.
Unlike more common cancers, ARMS is considered rare and thus receives minimal outside funding for research (causing the 5 year survival rate to be low).
Often has spread to other areas of the body by the time a diagnosis is determined. When a disease spreads, it is labeled a “meta-static” disease.
The 5 year survival rate for ARMS patients whose disease has become meta-static is approximately 20%.
Did you know?
Each school day, 46 children are diagnosed with cancer.
One in 330 children will develop cancer by age 20.
Cancer remains the number one disease killer of America’s children- more than Cystic Fibrosis, Muscular Dystrophy, Asthma, and AIDS combined.
Rhabdomyosarcoma accounts for approximately 3.5% of the cases of cancer among children aged 0-14 years and 2% of the cases among adolescents and young adults aged 15-19 years.
In November 2009, Jordan was fondly remembered by family and friends following his death
as seen in thisvideo tribute to Jordan.
Learn more about Sarcoma and the Team Sarcoma Initiative at their website.
Help battle Sarcoma in Jordan's memory by donating today
Thank you for visiting.Please take time to learn more about Jordan and the efforts of so many to honor his memory.
Content copyright 2010-2011. Jordan Paganelli Sarcoma Foundation, Inc. All rights reserved.
